1237例儿童家庭康复指导工作状况分析
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摘要
目的 :通过回顾性分析儿童家庭康复指导开展状况,了解儿童家庭康复的现状。方法 :收集2011年5月至2016年8月在复旦大学附属儿科医院康复科进行家庭康复指导的1 237例患儿的疾病情况、家庭状况、指导次数、康复反馈等信息。其中男性773例、女性464例,年龄1月龄至14岁,平均年龄20个月。结果 :2011年至2015年纳入的患儿数量分别为3例、55例、166例、250例、和413例;2016年1至8月350例。46.5%患儿的年龄段分布在6~12月,其中以发育迟缓、胎儿期或分娩期有高危因素的高危儿数量最多,分别占54.2%和24.8%。儿童的照顾者以母亲照顾为主,祖辈辅助居多。外省市相对本市需求较高。结论 :儿童家庭康复指导工作逐年增多,对于不同患儿家庭的情况和需求制定个性化的家庭康复指导方案,促进家庭开展家庭康复,提高随访率。
Objective: Through the retrospective analysis of the situation of children's family rehabilitation guidance to understand the status of children's family rehabilitation. Methods: Clinical data, family status, frequency of guidance and feed-back information of the children who had accepted the family rehabilitation guidance from May 2011 to August 2016 in the Rehabilitation Department of Children's Hospital affiliated to Fudan University were collected, and among them, there were 773 male and 464 female, aged from 1 month to 14 years old(mean age = 20 m). Results: The numbers of children enrolled from 2011 to 2015 were 3, 55, 166, 250 and 413 cases, respectively and that from January to August 2016, 350 cases. The age of 46.5% children was distributed at 6~12 months. Among them, the number of high-risk infants with high risk factors for developmental delay, fetal or childbirth was the most, accounting for 54.2% and 24.8%, respectively. Children's caregivers were mostly mothers, and grandparents aided in the majority. The demand of the other provinces was relatively higher than that of Shanghai. Conclusion: The guidance of children's family rehabilitation has increased year by year. In order to promote family rehabilitation and improve the follow-up rate, the family rehabilitation guidance plan is formulated for the situation and needs of different families.
Objective: Through the retrospective analysis of the situation of children's family rehabilitation guidance to understand the status of children's family rehabilitation. Methods: Clinical data, family status, frequency of guidance and feed-back information of the children who had accepted the family rehabilitation guidance from May 2011 to August 2016 in the Rehabilitation Department of Children's Hospital affiliated to Fudan University were collected, and among them, there were 773 male and 464 female, aged from 1 month to 14 years old(mean age = 20 m). Results: The numbers of children enrolled from 2011 to 2015 were 3, 55, 166, 250 and 413 cases, respectively and that from January to August 2016, 350 cases. The age of 46.5% children was distributed at 6~12 months. Among them, the number of high-risk infants with high risk factors for developmental delay, fetal or childbirth was the most, accounting for 54.2% and 24.8%, respectively. Children's caregivers were mostly mothers, and grandparents aided in the majority. The demand of the other provinces was relatively higher than that of Shanghai. Conclusion: The guidance of children's family rehabilitation has increased year by year. In order to promote family rehabilitation and improve the follow-up rate, the family rehabilitation guidance plan is formulated for the situation and needs of different families.
引文
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[2]张金明,赵悌尊.对我国残疾儿童康复的思考[J].中国康复理论与实践,2012,18(2):193-196
[3]王超,贺刚,李建忠,等.残疾青少年体力活动水平及其与运动自我效能的关系:基于加速度计的初步研究[J].首都体育学院学报,2016,28(4):380-384.
[4]Kruijsen-Terpstra AJ,Ketelaar M,Boeije H,et al.Parents’experiences with physical and occupational therapy for their young child with cerebral palsy:a mixed studies review[J].Child Care Health Dev,2014,40(6):787-796.
[5]Jeglinsky I,Autti-R?m?I,Brogren Carlberg E.Two sides of the mirror:parents’and service providers’view on the familycentredness of care for children with cerebral palsy[J].Child Care Health Dev,2012,38(1):79-86.
[6]王素娟,李惠,杨红,等.Peabody运动发育量表[J].中国康复理论与实践,2006,12(2):181-182.
[7]杨红,史惟,徐秀娟,等.象征性游戏测试的心理测量学特性研究[J].中国循证儿科杂志,2007,2(2):108-114.
[8]Letts C,Edwards S,Schaefer B,et al.The New Reynell Developmental Language Scales:Descriptive Account and Illustrative Case Study[J].Child Language Teaching&Therapy,2014,30(1):103-116.
[9]王慧琴,曲成毅,赵树平,等.Griffith精神发育量表在山西0-7岁儿童中的修订[J].中国心理卫生杂志.2007,21(10):700-703
[10]Morgan C,Novak I,Dale RC,et al.Single blind randomised controlled trial of GAME(Goals-Activity-Motor Enrichment)in infants at high risk of cerebral palsy[J].Res Dev Disabil,2016,55:256-267.
[11]Prechtl HFR.State of the art of a new functional assessment of the young nervous system.An early predictor of cerebral palsy[J].Early Hum.Dev.1997,50(1):1–11.
[12]Einspieler C,Yang H,Bartl-Pokorny KD,et al.Are sporadic fidgety movements as clinically relevant as is their absence?Early Hum.Dev,2015,91(4):247–252.
[13]Burger M,Frieg A,Louw QA.General movements as a predictive tool of theneurological outcome in very low and extremely low birth weight infants-A South African perspective[J].Early Hum Dev.2011,87(4):303-308.
[14]Einspieler C,Bos AF,Libertus ME,et al.The general movement assessment helps us to identify preterm infants at risk for cognitive dysfunction[J].Front Psychol.2016,7(22):1-8.
[15]黄真,杨红,陈翔,等.中国脑性瘫痪康复指南(2015):第二部分[J].中国康复医学杂志,2015,30(8):858-866.